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Post by GrumpyBigBee on Jun 3, 2009 10:38:26 GMT -5
Didnt see this until now. Hope you are doing better Rob.
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Post by Swarm on Jun 3, 2009 13:31:56 GMT -5
Didnt see this until now. Hope you are doing better Rob. Thanks man. Right now everything is real day to day. I return to Uof M hospital this coming Froday for all kinds of test with the transplant doctors. PS: LOVE the new Swarm helmet!!! It's awesome! |
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Post by Chilling Nightmare on Jun 4, 2009 7:24:59 GMT -5
Good luck there, IB and I know about hospitals dragging their feet on things even things as serious as this.
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Post by daytondave on Jun 4, 2009 17:08:01 GMT -5
It's not about foot-dragging in this case, it's about the availability of a heart.
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Post by johnandryan on Jun 5, 2009 18:02:55 GMT -5
I agree Dave - in lung transplant so I know what you mean.
-J
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Post by Chilling Nightmare on Jun 6, 2009 8:04:48 GMT -5
Fair enough.
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Post by Swarm on Jun 6, 2009 13:49:30 GMT -5
It's not about foot-dragging in this case, it's about the availability of a heart. True, and as DDave knows (being a doctor), there is a lot more to do with it than even that. The heart has to match my body size and type (this actually works against me in the short run, but for me big time in the long run with how well my body takes the transplant, recovery etc...), as well as blood type and several tissues. The good news is I don't have *any* anti-bodies in me. Anti-bodies are things (this is the best as I can explain it - maybe DDave can elaborate) that fight off - for a lack of a better word - anything foreign to your body. Basically, the body is going to reject anything it didn't make in the first place, a new heart included. The more anti-bodies you have the harder the recovery and entire ordeal can be. Well, I have none. Which is rare. That's huge. I had a major follow up with U of M yesterday. I'm cool. Still moving me as fast as can be toward this transplant. This Milrinone stuff I'm on is not meant to be on for long periods of time (meaning months). I'm 225lb. My body fat is under 15%. I'm strong. I've got a great attitude. If you saw me you would have no clue I'm basically the walking dead thanks to this med they have intravenously fed to me 24/7. I plan to be at GCON and kick some ass in some tournaments! And when the time is right, whatever is meant to be for me will be meant to be for me and whenever I get my heart it will be meant to be. This isn't something I expect everyone or even almost anyone to understand. I don't even get it and I'm living it. I'm just thankful I have the love and prayers of everyone here and everywhere else. I truly believe it has it's part in all of this. |
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Post by johnandryan on Jun 6, 2009 18:40:19 GMT -5
Swarm, the anti-bodies are huge are you said. We study HLA matching and I know about this as well, so you are correct.
Glad you are will be at GCON.
Attitude is important as is the whole process - it is hard to understand it all sometimes but I have seen it so I am able to empathize and give the love and prayers along with the brothers here.
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Post by sickman on Jun 7, 2009 0:12:56 GMT -5
It's not about foot-dragging in this case, it's about the availability of a heart. True, and as DDave knows (being a doctor), there is a lot more to do with it than even that. The heart has to match my body size and type (this actually works against me in the short run, but for me big time in the long run with how well my body takes the transplant, recovery etc...), as well as blood type and several tissues. The good news is I don't have *any* anti-bodies in me. Anti-bodies are things (this is the best as I can explain it - maybe DDave can elaborate) that fight off - for a lack of a better word - anything foreign to your body. Basically, the body is going to reject anything it didn't make in the first place, a new heart included. The more anti-bodies you have the harder the recovery and entire ordeal can be. Well, I have none. Which is rare. That's huge. I had a major follow up with U of M yesterday. I'm cool. Still moving me as fast as can be toward this transplant. This Milrinone stuff I'm on is not meant to be on for long periods of time (meaning months). I'm 225lb. My body fat is under 15%. I'm strong. I've got a great attitude. If you saw me you would have no clue I'm basically the walking dead thanks to this med they have intravenously fed to me 24/7. I plan to be at GCON and kick some ass in some tournaments! And when the time is right, whatever is meant to be for me will be meant to be for me and whenever I get my heart it will be meant to be. This isn't something I expect everyone or even almost anyone to understand. I don't even get it and I'm living it. I'm just thankful I have the love and prayers of everyone here and everywhere else. I truly believe it has it's part in all of this. STRONG!!!! A positive attitude and strong will power can be the difference. Just hang in there and as you said; whats meant to be will be. |
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Post by Swarm on Aug 28, 2009 9:08:09 GMT -5
Update on this: I have been going to a ton of doctor appointments and shit and I have one this Tuesday morning. They can't tell me a lot but they told me to pack some stuff and plan to maybe be admitted. I look fine but my fatigue levels have been dropping pretty rapidly lately and that seems to alarm them.
So they could be moving me up the list and get me ready for this.
I don't really know.
So if after Monday I'm not on here that's why.
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(if you haven’t already)